Sensory processing disorder affects my oldest son, all the time.
It’s here every day, day in and day out, making my son uncomfortable in his own body, and unable to tolerate so many things that I just take for granted.
Temple Grandin, speaks candidly about the sensory issues that accompany her autism diagnosis. She speaks candidly about how little research and understanding there is, for something that she considers to be the most significant impairment in her life.
It makes me a little panicky and even more so, angry, when I read about the lack of understanding, research, treatment, and care in the medical community, when it comes to SPD.
The one thing that I wish I could alleviate for my son, above anything else that he deals with, is the way his sensory system impacts his overall well-being.
It has been so much a part of his daily existence for so long, it’s hard to imagine what his life would even be like without SPD.
My youngest son also struggles with sensory processing issues. He is not on the spectrum, but clearly has difficulties with sounds, textures and smells. The older he gets, the more challenging his sensory system has become.
This affects every single part of our life, every single day.
I find myself tensing up when my son puts on his underwear, hoping it won’t cause a meltdown.
I am getting used to the stares when my child melts down in a noisy crowded place.
I have learned to just relax when he lies on the floor in the grocery store, because it makes his body feel better.
I take a deep breath and offer options, when the texture of the dinner I cooked doesn’t feel right.
All of it is a part of my sons’ daily work to understand and begin to help give their bodies what they need to stay regulated. Until my sons are able to do it on their own, I think knowledge and compassion are the only way tools I have to help them.
Sensory processing disorder is a very real part of our lives. Maybe, it is part of yours too.
Please, allow me to share our experience and progress with sensory needs.